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OpenTrials launch date + Hack Day

- August 25, 2016 in Events, Hackday, Open Trials, opentrials

Exciting news! OpenTrials, a project in which Open Knowledge is developing an open, online database of information about the world’s clinical research trials, will officially launch its beta on Monday 10th October 2016 at the World Health Summit in Berlin. After months of work behind-the-scenes meeting, planning, and developing, we’re all really excited about demoing OpenTrials to the world and announcing how to access and use the site! The launch will take place at the ‘Fostering Open Science in Global Health’ workshop, with OpenTrials being represented by our Community Manager, Ben Meghreblian. The workshop will be a great opportunity to talk about the role of open data, open science, and generally how being open can bring improvements in medicine and beyond!worldhealthsummit_logo As the workshop’s theme is public health emergencies, we’ll also be demoing Ebola Trials Tracker, another OpenTrials project showing how long it takes for the results of Ebola trials to be made available. If you’ll be attending the conference or the workshop, we’d love to meet you – please do get in touch and let us know.

Hack Day

If that wasn’t enough, we also have a confirmed date and location for the OpenTrials Hack Day – it will take place on Saturday 8th October at the German office of Wikimedia in Berlin. We’re inviting people from a range of backgrounds. So, if you’re developer, data scientist, health technologist, open data advocate, or otherwise interested in health, medicine, and clinical trials, come along and learn more about the data that powers OpenTrials, how it’s structured, and how to use our API to search the OpenTrials database or build applications using the data. On the day our technical lead and a domain expert will be on hand to explain the data and facilitate the day – we’re really looking forward to seeing what clever hacks and mini-projects you’ll create. For those of you who have already asked, we’ll be releasing documentation on the OpenTrials API and database soon, but meanwhile if you’re interested in the event you’ll find more details on the OpenTrials Eventbrite page, or you can register quickly below.
OpenTrials is funded by The Laura and John Arnold Foundation and directed by Dr. Ben Goldacre, an internationally known leader on clinical transparency. Contact: opentrials@okfn.org
Twitter: @opentrials

Progress report: OpenTrials – linking clinical trial data

- July 15, 2016 in Featured Project, OKI Projects, Open Trials, opentrials

Since last year Open Knowledge has been developing OpenTrials, an open, online database linking the publicly available data and documents on all clinical trials conducted – something that has been talked about for many years but never created. The project is funded by The Laura and John Arnold Foundation and directed by Dr. Ben Goldacre, an internationally known leader on clinical trial transparency. Having an open and freely re-usable database of the world’s clinical trial data will increase discoverability, facilitate research, identify inconsistent data, enable audits on the availability and completeness of this information, support advocacy for better data, and drive standards around open data in evidence-based medicine. The project is currently in its first phase (which runs until March 2017), where the focus is on building and populating the first prototype of the OpenTrials database, as well as raising awareness of the project in the community and getting user involvement and feedback. The progress that has been made so far was presented last month at the Evidence Live conference in Oxford, which brought together leaders across the world of Evidence Based Medicine, including researchers, doctors, and the pharmaceutical industry. This was an excellent opportunity to demonstrate the project and speak to both researchers who want to use the platform as well as people with a general enthusiasm for its impact on medicine. Around 40 people attended our talk which explained why OpenTrials is an important infrastructure project for medicine, covered some of the technical aspects of the platform, details of what data we’ve imported so far, and lastly a quick demo. If you’re feeling impatient, here are the slides from the talk, or scroll down for a summary. OpenTrials at Evidence Live

Ben Goldacre and Vitor Baptista present OpenTrials at Evidence Live 2016 (photo by benmeg / CC BY)

What we’ve imported into the OpenTrials database so far

  • 331,999 deduplicated trials, collected from nine clinical trial registries:
    • ANZCTR 11,645
    • ClinicalTrials.gov 205,422
    • EU CTR 35,159
    • GSK 4,131
    • ISRCTN 14,256
    • Pfizer 1,567
    • Takeda 1,142
    • UMIN 20,557
    • WHO ICTRP 298,688
Imported trials

Current functionality

  • Basic search (by keyword)
  • Searching for trials with publications
  • Uploading missing data/documents for a particular trial
  • Showing trials with discrepancies (e.g. target sample size)

What we’re importing next

Feedback and get involved

If you attended the talk and have any questions or feedback, please email us. And generally if you’re interested in contributing to OpenTrials, get in touch. Want to get early access to the data and be a user tester? Sign up and we’ll be in touch soon.